So I had brain surgery back in 2008. I have this thing called Chiari Malformation I. It is where my cerebral tonsils extend down into my spinal canal. It was what had been causing my headaches, migraines and other symptoms I've had since I was 4 years old. So a few months after my diagnosis, I had had surgery. They cut open the back of my head, removed part of my skull and top vertebrae and opened up my dura. A month later I had to have an additional surgery to fix a spinal fluid leak. For a while I felt a lot better. I still had bouts of bad headaches, but overall it improved my life. The surgeon who did my surgery pretty much told me I was cured and wouldn't need to see me again. Here I am, 11 years later, meeting back with a different neurosurgeon. Apparently my cerebellum is herniated just as far again. They also said it looks to be fused with my brain stem, which is also herniating into my spinal canal. The doctor called this Chiari 1.5 They let me know I have a connecti
Ramblings of a mother.